Micah is finally home. He came home on Saturday and we have been enjoying our time as a family ever since.
I want to continue to thank every single person who has kept my family and my little boys in prayer. THANK YOU!
There is no better feeling than being all together. But man, this whole experience really did a number on me. Yesterday I just broke down and sobbed for awhile as my husband consoled me. I never ever ever want to go through what we went through again. I fight fear daily as it tries to grip me and as I try not to be paranoid about every thing, every breath, sneeze..etc.
I want to be normal and enjoy having newborns like my regular person would do…but I will be honest, I actively have to work on it. I’m scared. Scared of a setback, scared of Josiah getting sick, scared of flu season, visitors..I mean..just wow. When I go to public places I steer clear of people who have symptoms of illness. The other day at the grocery store I was absolutely appalled as my cashier was coughing and sneezing..and it was too late for me to get out of the line. I was livid…how dare she cough and sneeze all over my groceries?!?! I mean,I am trying to give you a glimpse of my mindset when I go out. Before people come to visit us (and I decline all visits mostly) I have to advise them to shower and make sure they have not had contact with children before coming over to my house..it’s that intense.
RSV does a number on you when your child has had it so severely. My doctors have advised me to avoid public places until flu season is over…we are talking months!! But I will do what I have to do. We are working to see if our insurance will cover the Synagis shots and have our pediatrician backing us in case they try to deny us. Hopefully they won’t!
Tomorrow we will be taking Micah to a pulmonary specialist so they can keep an eye on his lungs.
On another note, We found out Josiah does NOT have Hirschsprung disease! His biopsy came back negative! Whoo! We are going to follow up with a gastroenterologist to find out why he gets uncomfortable when he has to poo. My husband is off for another week and a half and then I am on my own! Helpppp lol. Some pics.
Blessed to have my boys home!