What an eventful month! Micah came home a week ago and was doing fantastically well. While Micah was home, Josiah was in the NICU getting ready to come home. All he needed was to take his carseat test and to get circumcised. However, that all changed when the doctor told me that they were concerned about some swelling on his belly. He was not pooping regularly. They did an upper GI test on him (where they feed him barium and monitor how the barium moves through him via X-rays) and decided to transfer him to a children’s hospital that is world renown. It is an hour away and out of state. When they broke this news to me I was hysterical because I felt completely thrown for a loop. Unexpected. He went Friday night. Hubby and I drove up Saturday and stayed overnight while my mom was watching Micah for us.
Sunday night we came home and as I was putting Micah to sleep I noticed a strange cough. Um…what? So I called my mom and asked if she noticed the cough. She said he would cough after he ate but it was nothing noticeable. My mom is a nurse and I trust her, but as a mom I know my child’s normal feeding cough (like when he eats too fast). This was not normal. I knew I wouldn’t be able to sleep. My mom drove over and we stayed in the living room with Micah listening to him. The next day I called the doctor. She didn’t like his cough and the way his chest was retracting. I looked at her face and asked flat out – I’m taking him to the ER aren’t I? She nodded and off I went.
When we got to the ER they did a test and told me he had RSV. What?!?! He has had hardly ANY visitors and has absolutely no one sick come to see him. How could this happen? They admitted him to the hospital and he has been here since Monday. Thankfully he is eating normally, has no fever…he does have a bad cough and is on a small amount of oxygen to make him comfortable.
So in short..I have two of my babies in the hospital in two different states.
Josiah is doing great in every way except for his pooping issue. He is not on any oxygen, breathing tube, or anything else. He is eating regularly. He tested negative for malrotated intestines and now he will be tested for Hirschsprung disease. What is Hirschsprung disease? Hirschsprung’s disease is a blockage of the large intestine due to improper muscle movement in the bowel. It is a congenital condition, which means it is present from birth. In order to diagnose this they have to do a biopsy on some of his nerve cells in that area but since he’s a preemie his nerve cells have not fully developed yet so they want to wait until he’s at least 40 weeks adjusted age. So that means two more weeks. We will know more details tomorrow when we head over to talk with the doctors and surgeons. Hirschsprung is somewhat common and it something that can be corrected. He will go on to lead a normal life.
As for Micah’s positives..he has no fever and is doing pretty well considering he has RSV. He is comfortable for the most part and everyone said that it was a good thing that I caught it early. Here is a pic:
“Get me the heck out of here mom.”
Here is a pic of Josiah:
Before Micah ended up in the hospital, he wanted to FaceTime his bro.
All in all, things have been pretty hectic. I’m so in love with both of my boys. I can’t wait for the hospital nights to be over so I can enjoy my newborns like a normal person. I’m exhausted mentally, physically, and emotionally. I’m feeling like I live in hospitals. My prayer is for complete healing for both of my boys. Please join with me in making that prayer.